PWS awareness
Living and Thriving with PWS
Relationships part 2 Previously I’ve talked about what it’s like having a romantic relationship for people with PWS. Over the course of my relationship with Rachel I’ve had time to reflect on my life’s journey. Growing up with PWS was never easy and the transition into adult life was even harder. Maturing for an individual…
Read MoreLiving and Thriving with PWS
Being an advocate for individuals with PWS Prader-Willi Syndrome is very similar to those with Autism in the fact that there is a broad spectrum that individuals fall into. Growing up I’ve received so many services that have given me the ability to thrive in all aspects of my life. I began to realize…
Read MoreTelling our Stories
*We have reached out to both our students and adult residents who call Latham Centers home and have asked them to tell us their stories. They’ve courageously battled through medical and familial issues to be where they are today and they tell the stories of what makes them happiest while others will tell you about…
Read MoreLiving and Thriving with PWS: Part II
What being a Latham Player means to me: There are many responsibilities that come with being a Latham Player. We practice typically once or twice a month. We then perform at many different places throughout the year. It’s anywhere from a church to a special event we’re invited to. Practices need to be…
Read MoreLiving and Thriving with PWS
My most memorable performances as a Latham player: Over the course of the 3 years of being a Latham player we’ve done many memorable performances. The performances that have been most memorable for me are the CapeCodCAN! performances in Cotuit. They are held in May at the Cotuit Center for the Performing Arts. Many organizations…
Read MoreEducational Staff and Students Wear Orange for PWS Awareness Month
Students hold up Hungry for a Cure Hearts on Latham Campus. The Residential Team comes together and wears orange for National PWS Month. “I am 27 years old and I live in Maine. I was born with Prader-Willi Syndrome. My urge to seek food is like a roaring lion and my hunger is like…
Read MoreEducational Staff and Students Wear Orange for PWS Awareness Month
PWS FACTS: 1. How many people have Prader-Willi syndrome? It is estimated that one in 12,000 to 15,000 people has PWS. Although considered a “rare” disorder, PWS is one of the most common conditions seen in genetic clinics and is the most common genetic cause of obesity that has been identified to date. …
Read MoreLiving and Thriving with PWS
Romantic Relationships Part 1 Many people believe that individuals with PWS can’t fall in love or shouldn’t be in a romantic relationship. Research states we can’t have children due to infertility, which also makes people think that we can’t fall in love. Also, the assumption is we’d never be able to live together because we…
Read MoreLife with PWS from a Student’s Perspective
The below autobiography was composed by a student at Latham Centers as the first to a series about her life. Her positive take on Prader-Willi Syndrome and her willingness to discuss her journey are truly admirable. “Hi, my name is Bess. I live with a wonderful disability. I am not your average 19-year-old girl. I…
Read MoreTIP of the WEEK: Visual Schedules
Students with PWS thrive on a structured environment as well as a structured schedule. Some students benefit from visual schedules that offer both dense reinforcement and a high level of intensity. Boardmaker is an essential tool that provides visuals in order to support students in obtaining individualized schedules, which meet their personalized needs. The Boardmaker…
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