TIP of the WEEK: Giving Choices

One of the universal things that you will hear from parents of kids with PWS is that their child doesn’t like to hear the word no. Of course no one does but people with PWS hear this through our actions to keep them safe all day long. Offer as many possible choices as you can;…

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TIP of the WEEK: Airline Travel

If you are planning to travel by air this summer with your child, a few plans made in advance can help to make it a smooth experience. Call the airline ahead of time and ask for early boarding. Many families tell the airline that their child has autism because it is a more recognizable condition…

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TIP of the WEEK: Summer Vacation

Summer vacation is the best time of year for parents and public school teachers but for parents, not so much! Long unstructured days can be very difficult for children with PWS and in turn, difficult for the whole family. Take time before school lets out to create a routine that is easily attainable and stick…

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TIP of the WEEK: Music is Medicine

Music can be an extremely therapeutic tool to use throughout your child’s day. It is especially useful during times of transition or high anxiety. Do not hesitate to allow your child headphones and music during doctors appointments, car rides, or transitions during school (ask for this in his or her IEP). Test types of music…

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TIP of the WEEK: PWS Awareness Month

To those of us in the PWS community spreading awareness happens everyday. At each doctors appointment, IEP, sometimes even a trip to the store ends up spreading more awareness than we care to spread! But for one month each year we get to unabashedly talk about the syndrome that we love to everyone and anyone…

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TIP of the WEEK: Exercise Everyday

Getting your child to find the motivation to exercise can be a challenge but is immensely important to their overall health. Children and adults with PWS can struggle with coordination and that coupled with low muscle tone make exercising difficult. Here are some ways to incorporate exercise into your child’s everyday routine: Join in. Your child…

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TIP of the WEEK: Medical Appointments

There are many things that people with PWS have in common and one of them is lots of medical appointments. Here are some ways to manage all of those appointments: 1. When you are seeing a new doctor be sure to request a double appointment so the first half can be spent teaching the doctor…

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TIP of the WEEK: Sensory Easter Baskets

With yet another food holiday right around the corner here is a list of non-food and sensory friendly items to put in your child’s Easter basket. Please be mindful of choking hazards if your child is very young or has a history of eating non food items. All of these things are excellent for the…

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TIP of the WEEK: Exercise

No one can dispute the many benefits of regular exercise. Maintaining a healthy weight, increased relaxation and mood, and improving your immune system are just a few reasons that regular exercise should be a part of the daily routine for your family. Motivation to exercise can be difficult for a person with PWS due to…

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