Posts Tagged ‘understanding Prader-Willi Syndrome diet’
Dr. Jennifer Miller connects with students on Storytime
As we continue to celebrate Prader-Willi Syndrome Awareness Month, Latham Centers highlights special guests who have read to our students on Virtual Storytime.* On Wednesday, May 13th, Dr. Jennifer Miller met our Virtual Storytime family when she “Zoomed in” from Florida to read Where has the Moon Gone? by Hiroyuki Arai. It was a sweet…
Read MoreTip of the Week: In his words. Friendship
Many of the students at Latham Centers come with the experience of never having true friendships. One of the most incredible things to witness is when a new student comes to us and quickly starts to make connections with their peers and get the experience of friendship for the first time. Patrick has been with…
Read MoreTip of the Week: Preventing choking
A combination of thick saliva, an uncoordinated swallow, and a rush to eat make choking a real and dangerous hazard for people diagnosed with PWS. For this reason, it is imperative that all family members, babysitters, teachers, and staff are trained in CPR. As described earlier this week on our blog, a staff member at…
Read MoreTip of the Week: Connecting with other “ordinary parents with special children”
Every other year, I attend the National PWS conference and meet new people who share their unique and helpful experiences. Today, our team met Gina (Terrasi) Gallagher and Patricia Kinjoian, authors and sisters who discuss their experience as “ordinary parents with special children.” In their book, they discuss the “frustrations, sadness and stigmas they…
Read MoreTip of the Week: Holiday food security
There is no time more challenging than the holidays to maintain food security in your child’s life. Routines change, special events are plentiful, and food is the focus everywhere you look. Here are some ways to keep everyone safe and healthy over the next two months: · Avoid relatives who just don’t get it. If…
Read MoreTip of the Week: Slowing down fast eaters
Many children and adults with PWS have an uncoordinated swallow, placing them at risk for choking. Fast eating can make the risk even higher. Here are some things that can help reduce the risks of choking by slowing down and pacing while eating: Bite, sip, hands in lap. This is an easy way to remind…
Read MoreTip of the Week: Emergency preparedness
With the devastation happening in Texas this week, it is a good time to evaluate your emergency preparedness. It is never easy to prepare for emergency, and adding a family member with Prader-Willi syndrome to the mix makes it that much harder. Here are four tips: Medications – It is best to have an extra month…
Read MoreTip of the Week: Effective communication
Miscommunication is responsible for many, many behavioral outbursts in people living with Prader-Willi syndrome. Often times we say something that is either misinterpreted, misheard, or not understood at all. People with PWS typically have slower processing speed than their typical peers and therefore cannot fully understand complex instructions. If you give a child or adult…
Read MoreTip of the Week: Hospital Stays
If your child is hospitalized for any reason, the transition back to home life can be challenging. It is likely that their hospital routine, food, companions and expectations were quite different from what your child is used to at home. Here are some ideas to make the transition easier: Bring food from home. Hospitals will…
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