PWS Tips

Many people with PWS have delayed processing speed, which means it may take them longer than typical to hear something and then understand it fully. They may nod their head and tell you that they understand what you just said, but it is possible that they are just agreeing and did not fully understand your…

Even for children with Prader-Willi syndrome who do not have high food-seeking behaviors, it is important that they have a food-secure environment in the school setting. There is a spectrum of food-seeking, and not every child will actively look to obtain food that isn’t theirs. But the anxiety that the presence of food causes is…

Sensory processing disorder may be causing your child more difficulty than you realize. If your child is struggling in their classroom, chewing on inedible objects, or refusing to shower, brush their teeth, or wear weather-appropriate clothing, it may be that they are experiencing challenges associated with sensory processing disorder. Talk to your school’s IEP team…

Looking for some indoor activities that don’t include a television or tablet? On these days of winter when it’s not as easy to go outside, here are some ideas for indoor activities that will keep your child engaged. Teach them to draw! There are many videos that will teach you step-by-step how to draw your child’s…

Sometimes it can be surprising to us when a child with Prader-Willi syndrome breaks something that they love or hurts somebody that they are friends with – for no obvious reason. It’s important to remember that they are not being manipulative or trying to get extra attention for the most part; it is that they…

This is a time of change and unrest in our country right now. Depending on your child’s developmental level, the news may be very scary and confusing, and it may be difficult to explain to them what they are watching. My best advice is to turn off the news and turn on their favorite programs,…

The weeks between Thanksgiving and Christmas can be the most challenging time of the year for kids and families with Prader-Willi syndrome – and this year more than ever. All families experience holiday stress, but families with a child with PWS experience something that can barely be described. The focus on food during the holidays…

The holidays can typically be a difficult time for parents and guardians of children with Prader-Willi syndrome. This year, all families face an additional challenge in COVID-19. By building your community, even virtually, you may find yourself feeling that necessary additional support. The Latham Centers Admissions and Marketing Team will host its second Parent/Guardian centered…

In our newest PWS University Podcast, listen to Annika, one of the first students ever to participate in recording a podcast one year ago . In her second interview, she discusses sharks and scary movies, the 2020 summer program at Latham Centers, the importance of creativity, coping skills that she finds most helpful, and what…

The upcoming holidays will likely look a little different this year. Whether your plans are to stay home and have a quiet celebration with immediate family, or you are planning a larger Covid-safe gathering, it is equally important to prepare your child for the day. Having a menu ahead of time with portion sizes written…