PWS Tips

Back to school is right around the corner. Now would be a good time to start easing your child into the school year bedtime and wake up schedule. Starting slowly to go to bed and wake up earlier is much easier than forcing that routine the day before school starts. It will make for an…

With the highly unusual tornado hit on Cape Cod this week, I wanted to take this time to remind everyone of the need for emergency preparedness. Designate a spot in your home to wait out the storm, and along with maintaining the usual storm supplies such as food, water, flashlights, etc., be sure to have…

I am proud to introduce Jake, a student at Latham Centers, in the first episode of PWS University. In this episode, you hear Jake discussing his talents, friendships with peers, and how it feels to have Prader-Willi syndrome. Jake truly represents the pride and happiness that grows with support of family and staff. Jake clearly…

I’m excited to announce that Latham Centers will be creating a monthly podcast called PWS University to explore the different aspects of Prader-Willi syndrome — the good, the challenging, and everything in between!  Stay tuned for our upcoming episode on creating a home environment that builds on strengths, fosters success, and encourages independence. Look for our new…

As much as our kids love to swim, it’s important to practice high levels of supervision around the water. Swimming is one of the best exercises for people with Prader-Willi syndrome but low muscle tone and the fact that they easily fatigue means caregivers must be on high alert any time a person with PWS…

Keeping a routine and clear expectations will make for a successful and less stressful summer vacation. Changing from the tight and predictable nature of a school schedule to the unstructured environment of summer vacation can cause increased anxiety in your child. Create a daily and weekly routine and hang it on the wall. The weeks…

In honor of Prader-Willi Syndrome Awareness Month, we shared a “Tip of the Day” on social media throughout the month of May. Here are this week’s tips: People with PWS have a slow metabolism. It takes far fewer calories for them to gain weight than it does for a person without PWS. Always consult with…

In honor of Prader-Willi Syndrome Awareness Month, we’re sharing a “Tip of the Day” on social media throughout the month of May. Here are this week’s tips: People with PWS have an extremely high pain tolerance. Any complaints of pain should be taken seriously and brought the the attention of their doctors. Daily exercise is…

In honor of Prader-Willi Syndrome Awareness Month, we’re sharing a “Tip of the Day” on social media throughout the month of May. Here are this week’s tips: It is common for people with PWS to not like to drink water. Be creative by adding fruit, cinnamon sticks, or mint to plain water and you will…

In honor of Prader-Willi Syndrome Awareness Month, we’re sharing a “Tip of the Day” on social media throughout the month of May. Here are this week’s tips: Due to thick saliva, people with PWS have issues with dental hygiene. Thick saliva erodes the enamel and causes early tooth decay. Good dental hygiene practices and good…