Archive for May 2021

We hope you have enjoyed our daily tips and videos. Keep up the fight and do everything you can to spread the word about PWS. Go to conferences, present at conferences, hold a local seminar at your town library, work to create a PWS aware neighborhood and most of all be proud of your connection…

Advocacy for PWS shouldn’t stop after this month ends. So many misunderstandings still exist about the mindset of the person with PWS. Let’s continue to spread the word about how amazing people with PWS are, and keep teaching and coaching those around our kids to help create an environment where they can thrive and grow…

Theory of Mind is a developmental process where a child learns to empathize and see the world through other people’s eyes. People with PWS struggle with this, and often times we interpret this as not caring or being selfish. What we need to understand is that this behavior isn’t a choice, it has simply not…

Some people with PWS may need help with peer to peer relationships. Find a safe person that they can spend time with to practice relationship and communication skills. A siblings friend, cousin or anyone who will be kind and patient so the person with PWS can learn and grow and a friend. Today is the…

Most kids with PWS are the only one in their school and/or town with that diagnosis. Be sure to seek out PWS groups in your state, find virtual programs like Latham Centers book club, drawing class or craft classes that we offer or schedule regular online meetings with other people with PWS so they do…

Music has a powerful effect on mood, and this is especially true for the child and adult with PWS. Dancing is a great exercise and can be used to help with transitional times. Soothing music can help maintain focus and regulate moods. Today is the 26th day of PWS Awareness Month. Today’s Video:  Lily’s PWS Awareness…

Daily exercise is critical in maintaining optimal health in the person with PWS. Make exercise fun and join in – kids and adults are more likely to move if you are moving with them. Today is the 25th day of PWS Awareness Month. Today’s Video:  Josel’s PWS Awareness Month Fact of the Day- “I have PWS,…

Because PWS is a spectrum disorder, you will see some people with higher levels of food-seeking. Food-seeking may not start until later in elementary school, and some may never have high food-seeking behaviors. Regardless of where they fall on the spectrum, it is still important to maintain food security, especially during times of high anxiety.…

People with PWS have more strengths than challenges. When we focus more on the strengths and less on the challenges, we see a higher self-esteem and more motivation to achieve goals. Today is the 23rd day of PWS Awareness Month. Today’s Video: Luke’s PWS Awareness Month Fact of the Day- “Luke is HAPPY for PWS…

People with PWS have a very high pain tolerance. Pay close attention to any complaints of pain, as it could be an indication of a serious problem. Today is the 22nd day of PWS Awareness Month. Today’s Video: Brooke’s PWS Awareness Month Fact of the Day- “Happy PWS Awareness Month! Some people use coping skills…