Posts Tagged ‘Understanding Prader-Willi Syndrome’
TIP of the WEEK: Complicated Topics
There are times when we need to explain things to our kids that we ourselves cannot understand. Divorce, death, family members fighting or not speaking, seeing something good happen to the kid at school who picks on them- all of these are circumstances that can have complicated and confusing details that many of our kids…
Read MoreTIP of the WEEK: Finding the Right Sensory Environment
Many children and adults with PWS experience issues with sensory integration. Creating sensory rich environments can help to reduce anxiety and improve focus and concentration. Sensory needs are very specific to each individual so try lots of things and see which ones are the most effective. Explore lighting, scents, tactile toys, and seating options. Sometimes…
Read MoreTIP of the WEEK: Halloween Tips
With more awareness of children of non-typical diets and children with different needs it is a bit easier these days to celebrate Halloween minus all of the candy. Schools are getting better and better about leaving candy out of lesson plans and even neighborhoods are joining the teal pumpkin craze and offering nonfood treats for…
Read MoreTIP of the WEEK: Community Based Activities
While there are many benefits to any kind of exercise, participating in community based activities has the added benefit of inclusion and relationship building. Three of our residents from the adult program have been golfing at a nearby golf course for the past several months. Not only have their golf games improved but they have…
Read MoreTIP of the WEEK: Talking Politics
No matter how hard you try there is no escaping the election coverage this year. Regardless of who you are voting for here are some basics on talking with your kids about the upcoming election: 1. Be respectful. This is a perfect time to teach your kids about respect even for people that you do…
Read MoreTIP of the WEEK: Making Water Fun to Drink
Many of our kids don’t like to drink plain water but as parents and caretakers we know how important hydration is for overall health. Here are some ways to make hydrating more interesting without the use of artificial sweeteners: 1. Add fruit. One or two slices of fruit at the bottom of the glass add…
Read MoreTIP of the WEEK: Staying Connected
As I am preparing to attend the international conference in Toronto next week I want to encourage everyone to stay active in the PWS community. Whether you are the parent of a newborn or of an older child or adult, get and stay involved. Every age brings new challenges and celebrations and your experience is…
Read MoreTIP of the WEEK: Giving Choices
One of the universal things that you will hear from parents of kids with PWS is that their child doesn’t like to hear the word no. Of course no one does but people with PWS hear this through our actions to keep them safe all day long. Offer as many possible choices as you can;…
Read MoreInformational PWS Videos- Skin Picking: 4 of 4
Click image to view video Patrice Carroll, Latham Centers’ Manager of PWS Services, is recognized worldwide for her expertise in Prader-Willi Syndrome care. Patrice has filmed four videos which include Fostering Positive Relationships and Independence, De-Escalation during a Crisis, and Skin Picking. Today we show the fourth video, Skin Picking. “Skin picking is a common…
Read MorePatrice Carroll and Latham Centers’ Informational PWS Videos: 1 of 4
Click image to view video Patrice Carroll, Latham Centers’ Manager of PWS Services, is recognized worldwide for her expertise in Prader-Willi Syndrome care. Today marks the last day of National PWS Awareness Month and we are so happy to be part of this amazing PWS community. Patrice has filmed four videos which include Fostering Positive…
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