Posts Tagged ‘Prader-Willi Syndome Specialists on Cape Cod’
A glimpse of friendship and fun on campus
Staff member Ronnie and student Anilton were happy to have some outside Res hours following a rainy day last week. Anilton was full of energy and challenged Ron to race him around the track. He inspired other students to join in the fun, too. A friendly competition ensued with staff and students racing around the…
Read MoreTip of the Week: Difficult decisions: considering a residential placement
For parents of a child with Prader-Willi syndrome and other diagnoses, the decision to place the child in a residential setting can be a heart wrenching and confusing process. No one wants to have to make the decision, but when your child is struggling at home or at school to the point where their quality…
Read MoreTip of the Week: Road trip guidance
For many parents of children diagnosed with Prader-Willi Syndrome, the road trip –that old family pastime – can be a daunting idea: What do we do about the food? My child is so dependent on his/her schedule, how could we possibly spend a day or days in the car How do we keep him/her occupied…
Read MoreTIP of the WEEK: Summertime fruity recipes
Warmer temperatures are expected this week – these cool, tasty summer treats will help to beat the heat. Frozen Fruit Tart: A light but refreshing treat Buy or make a graham cracker crust. In a 9-inch pan, bake crust for 10 minutes. While the crust is baking, let light or sugar-free vanilla ice cream…
Read MoreTIP of the WEEK: Pick Sites
Living with pick sites is a way of life for many families of children with PWS. We all feel the same dread when we see a new bug bite, rash, or cut because we know what is to come. Once a pick site begins the only way for it to heal is by leaving it…
Read MoreTIP of the WEEK: Through Their Eyes
Matt has been in our adult program for several years. He tells me: “If something in my schedule needs to change tell me as soon as you can… I might still get upset but if I have time to get used to it then it won’t be as bad. If you tell me right before…
Read MoreTIP of the WEEK: Through Their Eyes
This week’s tip is brought to you by Evan, age 21. “When I’m upset don’t tell me that I’m ok because I’m not. Talk to me about things that I like. Let me be upset and don’t talk to me a lot.” What Evan is describing is exactly right! Validate, attempt to distract, and honor…
Read MoreLatham Centers is Life-Changing: A Parent’s Commencement Speech
Jonah Steinhart, teacher at Tamalpais High School, gave an incredibly inspirational graduation speech on June 8th, 2017. In just a few short weeks, over 432 people have viewed it on Youtube. Mr. Steinhart is also a parent of a new student to Latham Centers. In his 12-minute speech he mentions Latham Centers, and how the…
Read MorePWS: An Introductory Video by Patrice Carroll
Patrice Carroll, Latham Centers’ Manager of PWS Services, is recognized worldwide for her expertise in Prader-Willi Syndrome care. Patrice has filmed many videos on PWS which have been highlighted on the blog – today’s feature is an introductory piece on PWS (re-run). “I have personally witnessed, and we at Latham Centers have seen the incredible…
Read MoreTIP of the WEEK: Summer Safety Tips
Always use sunscreen. Even on a cloudy day our kids are susceptible to sun burns. Fair skin, temperature regulation issues, and high pain tolerance make sun exposure dangerous. Sun burns hurt and itch making skin picking much more likely. Be mindful while swimming. Our kids lack stamina and often tire easily and without warning. Keep swimming close…
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