Posts Tagged ‘Prader-Willi Syndome Specialists on Cape Cod’
Tip of the Week: PWS Awareness Month (Week 3)
In honor of Prader-Willi Syndrome Awareness Month, we’re sharing a “Tip of the Day” on social media throughout the month of May. Here are this week’s tips: Even if an individual with PWS has good safety skills (crossing the street, the ability to call for help when needed), don’t assume that those same skills…
Read MoreTip of the Week: PWS Awareness Month (Week 1)
In honor of Prader-Willi Syndrome Awareness Month, we’re sharing a “Tip of the Day” on social media throughout the month of May. Here are this week’s tips: Children and adults living with PWS often struggle with regulating their emotions and impulses. Keeping a predictable daily routine can often help to keep anxiety down. Many people…
Read MoreTip of the Week: In his words. Friendship
Many of the students at Latham Centers come with the experience of never having true friendships. One of the most incredible things to witness is when a new student comes to us and quickly starts to make connections with their peers and get the experience of friendship for the first time. Patrick has been with…
Read MoreTip of the Week: Managing Demands
Our kids have a tendency to never give up! That is helpful in many parts of their lives but can be frustrating and tiresome for parents when it comes to constant requests for “stuff”. Here are some ways to manage the seemingly endless demands for more: 1. Agree to what you can say yes to. Make…
Read MoreTip of the Week: In her words – Chloe
At 12 years old, Chloe is wise beyond her years. She has the energy and enthusiasm to fill the room and she’s the first person to try to help a friend in need. Chloe requested that she be interviewed for the Latham Tip of the Week because, as she said, “I have a lot to say…
Read MoreTip of the Week: Feeling Alone
Raising a non-typical child can be a lonely place; raising a child diagnosed with PWS multiplies those feelings because of the rarity of the syndrome. You get advice to not compare your child to your friends’ children, but it is unavoidable. You are enraged when you see pity in people’s eyes and you go to…
Read MoreTip of the Week: Preventing choking
A combination of thick saliva, an uncoordinated swallow, and a rush to eat make choking a real and dangerous hazard for people diagnosed with PWS. For this reason, it is imperative that all family members, babysitters, teachers, and staff are trained in CPR. As described earlier this week on our blog, a staff member at…
Read MoreTip of the Week: Connecting with other “ordinary parents with special children”
Every other year, I attend the National PWS conference and meet new people who share their unique and helpful experiences. Today, our team met Gina (Terrasi) Gallagher and Patricia Kinjoian, authors and sisters who discuss their experience as “ordinary parents with special children.” In their book, they discuss the “frustrations, sadness and stigmas they…
Read MoreTip of the Week: Holiday food security
There is no time more challenging than the holidays to maintain food security in your child’s life. Routines change, special events are plentiful, and food is the focus everywhere you look. Here are some ways to keep everyone safe and healthy over the next two months: · Avoid relatives who just don’t get it. If…
Read More“Celebrating Ourselves” Talent Show highlights from the Latham Players
The Latham Players performed to a packed house at last month’s “Celebrating Ourselves” Talent Show at Thirwood Place in South Yarmouth. The Players joined with other groups from all over the Cape at the October 21st Talent Show which was sponsored by CapeCodCAN (Cape Cod Collaborative Arts Network). The Latham Players is a group…
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