Tip of the Week: PWS Awareness Month (Week 1)

May 4, 2018

In honor of Prader-Willi Syndrome Awareness Month, we’re sharing a “Tip of the Day” on social media throughout the month of May. Here are this week’s tips:

  • Children and adults living with PWS often struggle with regulating their emotions and impulses. Keeping a predictable daily routine can often help to keep anxiety down.

  • Many people living with PWS have sensory processing disorder. Uncomfortable clothing, loud noises, and bright lights are a few of the things that can make them anxious and interfere with concentration.

  • Individuals diagnosed with PWS are highly motivated by relationships. They bond easily with trusted people and try very hard to meet the expectations of those close to them. Positive reinforcement and praise are the best ways to motivate and help the child or adult to reach their goals.

  • People with PWS produce thick saliva, causing early breakdown of tooth enamel. Excellent oral hygiene is vital for overall health.

 

Patrice Carroll is Latham Centers’ world-renowned Prader-Willi Syndrome specialist. She works with Latham Centers’ residents with PWS, their families and consultants, continuously learning and teaching about PWS best practices.

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