Posts Tagged ‘Wear orange for PWS Awareness’
TIP of the WEEK: The End of May
It never fails to strike me how our tiny community comes together during the month of May. We use social media, fundraisers, and gatherings to teach the world about PWS. Some of us share the beauty of the syndrome while others share their darkest days all to educate those outside of our community what it…
Read MoreEducational Staff and Students Wear Orange for PWS Awareness Month
Students hold up Hungry for a Cure Hearts on Latham Campus. The Residential Team comes together and wears orange for National PWS Month. “I am 27 years old and I live in Maine. I was born with Prader-Willi Syndrome. My urge to seek food is like a roaring lion and my hunger is like…
Read MoreEducational Staff and Students Wear Orange for PWS Awareness Month
PWS FACTS: 1. How many people have Prader-Willi syndrome? It is estimated that one in 12,000 to 15,000 people has PWS. Although considered a “rare” disorder, PWS is one of the most common conditions seen in genetic clinics and is the most common genetic cause of obesity that has been identified to date. …
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