TIP of the WEEK: Loving Someone Rare

Your child is not their IQ score or their new diagnosis from a recent psych eval. She is not how many steps she can take at the age that some other children are when they take their first steps. He is not his tantrums or his scars from picking. Your child is not a problem…

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TIP of the WEEK: Focusing in the Classroom

Getting and keeping the attention of a child with PWS in class can be a difficult task but there are ways to engage and help to keep them focused. 1. Whisper. My personal favorite. If your child is yelling, crying or having a tantrum- whisper. They will often be so intrigued by what you are…

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Gone

There is great sadness in the world-wide PWS family today. A person I have never met, a parent in another country has lost her baby with PWS to illness. The details are not important. That I never met the woman is not important. The hole I feel in my heart for her, her husband and…

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