Archive for February 2014
TIP of the WEEK: Loving Someone Rare
Your child is not their IQ score or their new diagnosis from a recent psych eval. She is not how many steps she can take at the age that some other children are when they take their first steps. He is not his tantrums or his scars from picking. Your child is not a problem…
Read MoreTIP of the WEEK: Focusing in the Classroom
Getting and keeping the attention of a child with PWS in class can be a difficult task but there are ways to engage and help to keep them focused. 1. Whisper. My personal favorite. If your child is yelling, crying or having a tantrum- whisper. They will often be so intrigued by what you are…
Read MoreTIP of the WEEK: The Art and Science of a Good Nights Sleep
Everyone needs a good nights sleep. So often we hear from parents of children with PWS that their child struggles with sleep issues. Whether they struggle to fall asleep, wake easily, too often throughout the night or too early in the morning, at some point most kids with PWS will have sleep issues. First, a…
Read MoreGone
There is great sadness in the world-wide PWS family today. A person I have never met, a parent in another country has lost her baby with PWS to illness. The details are not important. That I never met the woman is not important. The hole I feel in my heart for her, her husband and…
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