Tip of the Week: A moving essay by a loving sister

July 27, 2018

The New York Times published a profoundly moving article last week – it is worthy of sharing with the Prader-Willi syndrome community and beyond. In “Mourning the Loss of a Sibling Rival,” Gina DeMillo Wagner writes, “My brother had special needs and could quickly veer from loving to violent. When he died, I grieved for him and also for the loss of the possibility of a closer relationship.” Her piece so beautifully articulates loving – and living with – someone with PWS. And it offers a unique perspective of how far we have come in the treatment and care of our loved ones living with PWS.

This link will take you to Gina’s essay: https://nyti.ms/2muKJZK?smid=nytcore-ios-share

 

Patrice Carroll is Latham Centers’ world-renowned Prader-Willi syndrome specialist. She works with Latham’s residents with PWS, their families, and consultants, continuously learning and teaching about PWS best practices. Do you have questions for our PWS specialist? Submit your “tip” topics or general questions to TipTopics@LathamCenters.org.