TIP of the WEEK: Making the Most of Summer

Transitioning from school to summer vacation can bring some unique challenges for families living with PWS. While typical children look forward to the days of leisure and lack of routine, the child with PWS can find this change highly stressful and, at times, frightening. Getting in to a new routine as soon as possible is crucial to summer break success!

Stagger big events (camp, amusement parks, beach trips, family visits) so you have something to look forward to every few weeks. Too many big events close together, even if they are events that are exciting and fun, can be overwhelming and will ultimately cause stress that lead to unwanted behaviors. Explore camp options, many states have camps for children with additional needs that will accommodate your child’s uniqueness. If you are the primary care giver- schedule time that you can rest and take breaks. Going from school to vacation can be equally, if not harder, for the caregiver than it is for the child.

Whatever your summer plans, be sure to spend time doing activities that everyone in the family can enjoy!


Patrice Carroll is Latham Centers’ world-renowned Prader-Willi Syndrome specialist. She works with Latham Centers’ residents with PWS, their families and consultants, continuously learning and teaching about PWS best practices.

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