Tip of the Week: Creating best practices

In the almost two decades that I have been working with people diagnosed with Prader-Willi syndrome, I have seen best practices change many times. PWS is such a complex disorder that the need to change and be flexible with your beliefs is integral in the success of children and adults with the syndrome. You do what works until it doesn’t work anymore and then you are charged with finding new ways to promote the best quality of life possible. Attending conferences, consulting the experts (which always includes families living with PWS every day of their lives), and taking educated and calculated risks are the keys to establishing newer and better best practices for people with PWS.

Patrice Carroll is Latham Centers’ world-renowned Prader-Willi Syndrome specialist. She works with Latham Centers’ residents with PWS, their families, and consultants, continuously learning and teaching about PWS best practices.