TIP of the WEEK: When Things Get Bad

Latham-Centers2You will inevitably hit some rough patches along the way. Here are some things to keep in mind when your life with PWS takes a wrong turn:
1. It’s not intentional. Your child’s behavior is a result of feeling out of control, disappointed, physically ill, any number of reasons, but it is not an intentional behavior directed at you. It is out of their control in that moment and remembering this will help you to stay on their side and weather the storm.
2. Reach out. You can’t and shouldn’t do this alone. If you don’t have a support system physically close by then use social media, crisis hotlines, and local agencies. Although life with a child with PWS in crisis can feel very lonely, you are not alone. Ever.
3. Prioritize. The goal is getting your child back on track. Obligations that you may have to family or friends may have to wait until you are more available.
4. Get through the day. Sometimes it is a minute to minute battle. Get through it and put long term goals on hold temporarily.
Always remember that even if it seems as though this will never get better, it will. Good days are right around the corner!

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Patrice Carroll is Latham Centers’ world-renowned Prader-Willi Syndrome specialist. She works with Latham Centers’ residents with PWS, their families and consultants, continuously learning and teaching about PWS best practices. 

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