Tip of the Week: Path for PWS study
March 8, 2019
Latham Centers is thrilled to be working with the FPWR in the Path for PWS study. We need parents’ input for this exciting study that will give us vital information on our kids with PWS and their future treatment. Additional information follows. Please consider participating!
PATH for PWS is a natural history study investigating serious medical events that occur in our loved ones with PWS. The data is intended to inform development and clinical trial design for potential new treatments. This study is vital to our community and is supported by PWSA(USA) and FPWR as well as other international PWS organizations. The study is financially supported by Zafgen. An ambitious enrollment goal of 500 participants has been set and we need your help in reaching that goal. In particular, we are seeking adolescents and adults with PWS, age 12 or older, to participate. To learn more about the study, you can visit www.PATHforPWS.com.
Patrice Carroll is Latham Centers’ world-renowned Prader-Willi syndrome specialist. She works with Latham’s residents with PWS, their families, and consultants, continuously learning and teaching about PWS best practices. Do you have questions for our PWS specialist? Submit your “tip” topics or general questions to TipTopics@LathamCenters.org.