Tip of the Week: Living in the new normal

School is just starting and for so many kids with Prader-Willi syndrome, the new normal is a challenge. Whether it is in-person learning, virtual, or hybrid, this school year is bound to bring new challenges and increased anxiety. Mask mandates, new routines, social distancing guidelines, and unfamiliar rules can prove to be too overwhelming for a child with PWS. Address issues that come up early and involve school administrators if you are having a difficult time getting your children’s team to listen. Be patient with teachers and aides as they too are adjusting to this new way of life. Don’t forget that we are here for trainings or consultations if you feel that the school needs a little extra education on PWS. As with everything else, your child is looking to you to set the tone. Be positive and upbeat – even when you feel the opposite!

Reach out to us if you need help and be sure to make time for yourself.


Patrice Carroll, Latham Centers’ Director of PWS Services, is world-renowned for her Prader-Willi syndrome expertise. She works with Latham students and residents, their families, and other experts, continuously learning and teaching about PWS best practices. If you have PWS-related questions, we invite you to email TipTopics@LathamCenters.org.

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