Tip of the Week: Invitation to April 9th PATH for PWS Study Webinar

March 29, 2019

For our Latham friends near and far with a loved one diagnosed with Prader-Willi syndrome, I’d like to remind you that participants are needed for a new study, PATH for PWS: Paving the way for Advances in Treatments and Health for PWS, that will help us better understand serious medical events in PWS.

A short 30 to 45-minute informational webinar has been scheduled for Tuesday, April 9th at 12:00 p.m. EDT for anyone who would like to learn more about the study. To join the webinar (or receive a recording of it), please register for PATH for PWS: Paving the way for Advancements and Treatments in Health in PWS here.

PATH for PWS is a 4-year non-interventional study that is intended to inform the development and clinical trial design of potential new treatments. The study is open to children, adolescents, and adults with PWS age 5 and older. Time will be reserved in this webinar for Q&A, so bring your questions!

This webinar will be recorded and a copy will be emailed to everyone who registers – this way, if you can’t attend the webinar, you can watch the recording at a later time. After registering, you will receive a confirmation email containing information about joining the webinar.  For more information, please email info@PATHforPWS.com, or contact PATH for PWS Study Coordinator Lisa Matesevac, AuD, at (760) 420-5878.

 

Patrice Carroll is Latham Centers’ world-renowned Prader-Willi syndrome specialist. She works with Latham’s residents with PWS, their families, and consultants, continuously learning and teaching about PWS best practices. Do you have questions for our PWS specialist? Submit your “tip” topics or general questions to TipTopics@LathamCenters.org.