Tip of the Week: #GrowingupRare
With three more weeks until Rare Disease Day, we encourage the entire PWS community to join with PWSA (USA), Latham Centers, and other organizations supporting those with rare diseases to get involved. Together, we can help ensure that individuals living with rare diseases will have more equitable access to diagnosis, treatment, care, and social opportunity. Social media opportunities to join the movement include #GrowingUpRare and #ShareYourRare.
Patrice Carroll is Latham Centers’ world-renowned Prader-Willi syndrome specialist. She works with Latham’s residents with PWS, their families, and consultants, continuously learning and teaching about PWS best practices. Do you have questions for our PWS specialist? Submit your “tip” topics or general questions to TipTopics@LathamCenters.org.