TIP of the WEEK: Giving Thanks
Traditionally this is the week that we reflect on the things in our lives that we are thankful for, the people and relationships that bring us joy. But what do we do when those very people are causing us so much turmoil and stress? There are families that are currently going through crisis with their children, battling behaviors that those outside of the PWS community cannot even comprehend and although the rest of the world is giving thanks, those families are crying for help, feeling hopeless and asking why this is the life that they were given. For those families I want to say: hold on, don’t give up. It may be so hard to believe but this will not last and you will make it through. Try not to compare yourself or your child to anyone else, even if they are the same age and same developmental level. Everyone experiences PWS differently and it is not your fault that your child is having these challenges. Take time to look back to better times and remember the feelings that you had then because those feelings will return. Try not to isolate even if you feel like no one understands. Reach out to online groups if you do not have friends who have children with PWS (and most people do not). Call agencies for guidance, we take calls from parents regularly and are always happy to listen and give what advice we can. Use the resources from PWSAUSA, there are caring and experienced people on the other end of the phone and they want to help you. So even if it seems like you are alone and desperate, remember that there are people here to help and families that have gone through similar situations and come out intact on the other side. And give thanks even if the list is short because this time of challenge will pass and happiness will return to your family.
P.S please remember to assign one person to watch your kids this Thursday. Consider it the equivalent of a “designated driver”. One person remains accountable, a group assumes that someone else is doing the job. Take time to review the signs of gastric distress and seek immediate medical help if necessary. Have a great holiday and don’t forget to thank all those in your child’s life that make a choice to be there. No one can care for and love your child like you do but we come a close second!
Happy Thanksgiving everyone!
Manager PWS Services