TIP of the WEEK: Community Outings


Some children with PWS have a difficult time in crowds or unknown environments causing some parents to avoid many community trips. Taking your child on an outing does not have to be stressful. With the right amount of planning it can be a successful trip for everyone. Many parents avoid community outings because of the fear of an outburst and this only leads to feelings of isolation and resentment.
1. Pick an outing. Whether it be a store, park, church or anywhere you want to be able to go frequently.
2. Go on off hours. Practice the trip when it is less busy and your child can become comfortable with the environment when there are less distractions.
3. Have clear expectations. Go over the rules and have your child repeat them back. Use social stories and tell them often.
4. Keep trying. The more frequently you go into the community the more comfortable you and your child will be.


Patrice Carroll is Latham Centers’ world-renowned Prader-Willi Syndrome specialist. She works with Latham Centers’ residents with PWS, their families and consultants, continuously learning and teaching about PWS best practices. 

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