PWS Tip of the Week: Rare Disease Day 2022
On the last day of February every year we celebrate Rare Disease Day to acknowledge and bring awareness of both children and adults living with rare diseases. This year we will be highlighting our students with PWS and other rare diseases with pictures, both old and new, and quotes from their families about what makes their child both unique and wonderful! At Latham we celebrate rare every day and we look forward to sharing our experiences with the rare disease community all next week.
Patrice Carroll, LICSW, is world-renowned for her Prader-Willi syndrome expertise. As Director of PWS Services at Latham Centers, she works with Latham students and residents and their families, as well as experts in the field, teaching and learning PWS best practices. Patrice also serves on the IPWSO (International Prader-Willi Syndrome Organisation) Caregivers Board, and she co-chairs the PWSA | USA Professional Providers Advisory Board. If you have PWS-related questions, we invite you to email TipTopics@LathamCenters.org.