I was lucky enough to be asked to speak at and participate in the PWS conference in Orlando Florida. When I went down there I was already aware of what PWS was and how it affects the children in my care. However I hadn’t had the opportunity to meet and speak with the families it affects. I was struck at what a tight knit community the PWS community is. More experienced families were offering advice to families recently affected by the syndrome. Older kids were helping the younger kids in the YIP and YAP programs, and providers were holding conferences to give information and trainings to other professionals in their field.
I was impressed to hear that this is the first time in history that we are seeing people affected with PWS live to be elderly. The advancements in treatments have soared, and being able to see how other programs treat PWS was great. It made me realize how lucky I am to be part of such a dynamic team.
How impressed others became when I told them I was from Latham Centers. What a reputation Latham has amongst other programs for being ahead of the rest, and the leading program for the treatment of children affected with PWS. I am proud to be here and a member of this dedicated team. I encourage anyone to go on the pwsausa website to learn more about this syndrome and what the future holds for our courageous students.