Keeping Sane in School: A Compilation of Tips by Patrice Carroll

February 24, 2016

Prader-Willi Syndrome tips
Patrice Carroll is Latham Centers’ world-renowned Prader-Willi Syndrome specialist. She works with Latham Centers’ residents with PWS, their families and consultants, continuously learning and teaching about PWS best practices. Every week we are fortunate enough to learn a PWS Tip from Patrice. Below is a compilation of PWS Tips specific to getting back to school, especially after the February Vacation week!
1.  Ask your school if you can do a PWS training for the other students. Children will often be more accepting if they have a better understanding of the syndrome.
2. Be sure that your school understands the need for food security. Ask for a no food policy during birthdays and holidays.
3. Remind schools and day programs FREQUENTLY of the no food policy. New staff may not be aware, especially after a school vacation.
4. Use social stories to make expectations clear and to prepare for any upcoming events.
5. For the child or adult who asks multiple questions about their daily schedule – write it down or use visuals and laminate it. Laminating makes it difficult to rip up, and formalizes it.
6. Don’t get caught up in the achievements of other children. Comparing your child to someone else’s isn’t helpful to anyone.
7. A regular bedtime routine free of electronics or anything over stimulating can help with bedtime transition. Keep the same routine all week long.
8. If you are concerned about your child at school or program make calls early on! Don’t let something build up to a problem if you can address it in the early stages.

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