TIP of the WEEK: The Home Visit

February 17, 2017

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When your child is in residential placement, holidays and school vacations can be challenging times. After a few days you start to wonder how you ever did this even though your child was home with you for most of their lives. This is normal. Don’t expect a perfectly smooth ride. House rules and school rules are different, and that’s ok.
Some parents feel as though their child should be able to take a break from their diet and food restrictions as a treat– don’t do this. Allowing increased food access or special treats is anxiety provoking at best and potentially very dangerous. It is best to go over house rules in advance and, if possible, a rough itinerary of the events planned. Most importantly, be patient with yourself. You have done this before and you can do it again. Enjoy the time together and don’t hesitate to reach out to your child’s school if you need extra help.

 

Patrice Carroll is Latham Centers’ world-renowned Prader-Willi Syndrome specialist. She works with Latham Centers’ residents with PWS, their families and consultants, continuously learning and teaching about PWS best practices.