Posts Tagged ‘PWS caregivers’
Tip of the Week: Feeling Alone
Raising a non-typical child can be a lonely place; raising a child diagnosed with PWS multiplies those feelings because of the rarity of the syndrome. You get advice to not compare your child to your friends’ children, but it is unavoidable. You are enraged when you see pity in people’s eyes and you go to…
Read MoreMy experience as co-chair of the 34th PWSA (USA) Professional Providers Conference
The Prader-Willi Syndrome Association (USA) Professional Providers Conference in Orlando in November was a huge success. As co-chair of the Professional Providers Advisory Board, I had a unique and amazing experience. This conference enabled me to connect with other PWS providers across the country, all of whom have given me insight into the challenges and…
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