Patrice Carroll, LICSW, provides expert PWS outreach locally and internationally

We’re excited to share news of “Project ECHO” – an initiative bringing crucial information to the world about Prader-Willi syndrome (PWS).  

Latham’s Director of PWS Services, Patrice Carroll, has been an exceptional PWS education and advocacy leader in the Prader-Willi community for many years. As an active participant in the International Prader-Willi Syndrome Organisation (IPWSO), she has earned the honor of being invited to join two new committees, in addition to her service as a conference presenter and caregivers board member. Both new committees will help address the needs of the international PWS community.  

IPWSO Online Events Committee:

The purpose of this committee is to use technology to reach all corners of the globe. The committee will educate, advocate, and provide support to those most vulnerable and in need in the PWS community. This committee plans, organizes, and runs the Mental Health and Care Providers ECHO series as well as biannual summits (summit topics to be determined). Topics for this year include mental health well-being, improving quality of life, addressing challenging behaviors, and more. Patrice will be leading and moderating each ECHO session and summit this year, along with Tony Holland!

IPWSO Research Committee:

This committee will be considering IPWSO’s role in clinical research. There is currently a gap in the international community as far as research and data collection. This committee will address the limitations and work to broaden IPWSO’s role in the research of people living with PWS globally.

Patrice continues to be a member of the IPWSO Professional Providers and Caregivers Board. We are fortunate to have Patrice’s expertise at Latham Centers and in our Cape Cod community!

More about IPWSO’s new ECHO series:  Project ECHO® stands for the Extension of Community Healthcare Outcomes. Through the use of Project ECHO’s® methodology, there is real potential for the PWS community to facilitate connections, increase understanding of the syndrome, and share knowledge about treatments and supports throughout the world. 

Pictured above:  Patrice with a Latham student; Patrice with colleague Brittni Kliment recording a local access TV spotlight feature; Patrice at an international conference (with the Provider Board and presenting).


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