The making of “And they said my child would never”


We are thrilled with all of the amazing feedback we have received from our new video. Several people have asked what inspired us to make the second installment of “And they said my child would never”, and the answer is simple: the kids inspired us and continue to inspire us every day. There are so many misconceptions about children diagnosed with Prader-Willi syndrome, and often the good is left out. Online searches may scare a family with a new diagnosis and we want to be the voice that tells families that despite some challenges, their lives will be good. Great, actually! The love and energy that comes from children with PWS is second to none and I have been honored to be a part of their lives for so many years.


Patrice Carroll is Latham Centers’ world-renowned Prader-Willi syndrome specialist. She works with Latham’s residents with PWS, their families, and consultants, continuously learning and teaching about PWS best practices. Do you have questions for our PWS specialist? Submit your “tip” topics or general questions to

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