Creating a calming space
Individuals with Prader-Willi syndrome can often become overwhelmed or overstimulated, requiring a space where they can go to regroup. Creating a safe space – a sensory calming environment – can help to avoid outbursts when the environment becomes too stimulating. These calming spaces can be done anywhere in the home as long as they are free from bright lights and excessive noise. A small tent or teepee can be placed in a low-traffic room in your home that includes a soft chair or bean bag, sensory toys, and if possible, a small and inexpensive sound machine. Create a routine where your child goes to this space for a few minutes when you see that they are starting to show signs of upset, and you may avoid larger issues from ever starting. We would love to see your ideas for calming spaces in your home!
Patrice Carroll is Latham Centers’ world-renowned Prader-Willi syndrome specialist. She works with Latham’s residents with PWS, their families, and consultants, continuously learning and teaching about PWS best practices. Do you have questions for our PWS specialist? Submit your “tip” topics or general questions to TipTopics@LathamCenters.org.