PWS Tips

For the past several months, we have been offering social opportunities over Zoom for kids across the country diagnosed with Prader-Willi syndrome. Initially we started storytime and social hour to offer families an additional activity for their kids, but it quickly became so much more. We saw the connection that all of the students made…

Celebrating the 4th of July is the perfect time to talk about our kids and independence! We all want our kids to be more independent so how do we teach them while keeping their stress level at baseline? Keep learning consistent. Even if the first 50 times you see little progress, keep at it. Repetition…

It seems like every day we get more information that changes the way we operate in this new normal. We want to make plans and promises and give our kids the routine and stability that they need. Unfortunately, new information or lack of information is keeping us from making those plans and keeping those promises.…

It is fair to say that one of the hardest things about living in this new normal is being away from your children at a time when we all want to be closer to our loved ones. Knowing that they are well cared for and safe feels good, but not being able to see and…

In honor of Prader-Willi Syndrome Awareness Month, Latham Centers shared a “Tip of the Day” on social media throughout the month of May. Here are this week’s tips: Even with the list of challenges that people with PWS have, the list of what is good is so much longer. People with PWS are smart, funny,…

In honor of Prader-Willi Syndrome Awareness Month, Latham Centers shares a “Tip of the Day” on social media throughout the month of May. Here are this week’s tips: Temperature regulation is an issue for people with PWS. They run the risk of not feeling the very cold temperatures in the winter, as well as tending…

In honor of Prader-Willi Syndrome Awareness Month, Latham Centers shares a “Tip of the Day” on social media throughout the month of May. Here are this week’s tips: For individuals with PWS, swallowing issues are common, putting the child or adult at a higher risk of choking. To lessen the risk of choking, encourage small…

Prader-Willi Syndrome Awareness Month: In the month of May, we celebrate PWS awareness. May is the time that we remind ourselves of all of the amazing things that make our kids who they are, and we also look at the challenges that can get in the way of them living their best lives. Although there are…

Especially for our Prader-Willi syndrome community – but helpful reminders for all of us: With the latest changes to our day-to-day lives as a result of the coronavirus, we wanted to share some suggestions for you and your children. When talking to your child, keep your message brief and calm. Remember that your child is…