Latham Celebrates Rare Disease Day

Nicholas is a great kid with an awesome sense of humor and a love for learning, especially from books. He can identify quotes from any Star Wars movie, name all the presidents from first to 46th, spot-on mimic voices from past popes to celebrities like Steve Harvey and play the keyboard by ear. Submitted by…

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Latham Celebrates Rare Disease Day

When I asked my husband what his favorite things about Bella are he said her quirky sense of humor, and the reliability of her schedule – she will wake you up with a smile at 7 AM without fail and say “Hi daddy its morning are you coming to make breakfast”. One of my favorite…

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Latham Celebrates Rare Disease Day

  Domie is always thinking about others and how he can help. He tries so hard to make us very proud of him by doing a good job in school and in the community. Submitted by Dominic’s father, Dom Sr, and Jenny Dominic is always up for an adventure. He has a talent for picking…

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Latham Celebrates Rare Disease Day

Awe, Sequoia! She is incredibly empathetic and so grateful for everything. She is fun to be with and her wit makes us constantly laugh. Submitted by Sequoia’s mother, Kelly #rockyourrare #Lathamcelebratesrare

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Latham Celebrates Rare Disease Day

Angel has a very rare genetic disorder that causes some challenges but also makes her uniquely happy, lovable, and special! Submitted by Angel’s mother, Jennifer #rockyourrare #Lathamcelebratesrare

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Latham Celebrates Rare Disease Day

Luke has brought so much joy and love to our family and friends; he has the ability to brighten anyone’s day with his humor and his belly laugh that can make anyone smile! Submitted by Luke’s mother, Debbie #rockyourrare #Lathamcelebratesrare

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Latham Celebrates Rare Disease Day

Mia is a very special young lady. Whether in the classroom or at her job, she is a hard worker always trying her best. She has a kind heart and is a good friend. Mia can make you smile and laugh. Your day is always brighter when she is around. I am so happy that…

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Latham Celebrates Rare Disease Day

Mack is kind, genuine, and honest. He exudes enthusiasm, which can be seen in his big smile. Things that make him happy are his family, his dog (Beatrice), 76ers basketball (especially his favorite player, Danny Green), Drexel University Women’s and Men’s basketball and pep band, hiking, participating in Special Olympics swimming, track, and walking, roller…

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Latham Celebrates Rare Disease Day

Her beautiful smile and crazy humor….. Her easy ability to put together tough puzzles… When Bridget puts her mind to something, she does it!! Her patience and kindness to her friends and cousins Her tremendous knowledge of different breeds of dogs and behaviors of animals Her closeness and love she feels for her brother and…

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