Prader-Willi Syndrome Awareness Month at Latham Centers

May 1, 2015

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Bulletin boards around campus give facts and quotes about PWS to visitors, staff and students.

 

May is Prader-Willi Syndrome Awareness month. As proud members of the PWS community, staff, students, and adult residents are coming together to increase visibility on Cape Cod about what PWS is, the effects of the syndrome, and how the community can help increase awareness globally.

Throughout the month you will see images of staff, students, and adults coming together wearing orange, the national color for PWS. Photos will be posted of these groups on the blog with facts and stories about the syndrome. Latham Adult residential homes will be highlighting PWS via orange lights and orange accessories around adult residential homes.

Will you teach someone about PWS this month and join the Latham Centers team?  

The Foundation of Prader-Willi Syndrome Research website states: Prader-Willi syndrome (PWS) is a genetic disorder that occurs in approximately one out of every 15,000 births. PWS affects males and females with equal frequency and affects all races and ethnicities. PWS is recognized as the most common genetic cause of life-threatening childhood obesity.

The common characteristics defined in the initial report included small hands and feet, abnormal growth and body composition (small stature, very low lean body mass, and early-onset childhood obesity), hypotonia (weak muscles) at birth, insatiable hunger, extreme obesity, and intellectual disability. PWS results from an abnormality of chromosome 15, and definitive diagnosis is now based on genetic testing.

 

 

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