Latham’s Prader-Willi Syndrome Social Skill’s Group: Part Two

May 25, 2010

May is PWS Awareness Month. Our Social Skill’s groups met to do our part to increase awareness. This included young men and women between the ages of 13-21. We answered the following questions together. Some of these are questions that the PWSA (USA) Advisory Board answered at the end of last year in the newsletter. Some are questions from the book; “Prader-Willi Syndrome Is What I Have Not Who I am!” We are hoping to have our answers published in the second addition. Thanks for taking the time to read our answers and getting to know us!
What makes me feel anxious?

Waiting for parents to come, home visits, seeing others going on home visits, level system, when people let you down, weight related issues, when we do not get the right food, waiting for meds…

What makes me angry?

When you get dropped a level, when people don’t mind their business, when people don’t share, when you get accused of something, when people call you names, when people are bossy, someone telling a lie, getting a bad grade…

What are the issues in your life where you need better control?

People being unsafe around you, safety around food, anger, handling emotions, following directions, handling someone you know dying, disagreeing with others, my behavior, my laundry, meds., problems with family, social skills, money, budgeting, buying food, driving, water temperature, school work, showers/hygiene , stopping picking, When I’m missing people, dealing with extra food around, time management, boundaries, exercise…
What makes a “good friend?”

Being kind to peers, sharing (Wii), respecting others, listening when someone speaks, respecting personal space, saying “excuse me,”
getting to know the other person, having dinner conversation…

“Drag your thoughts away from your troubles… by the ears, by the heels, or any other way you can manage it.”
~Mark Twain

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