Latham’s Prader-Willi Syndrome Social Skill’s Group: Part Three

May 28, 2010

May is PWS Awareness Month. Our Social Skill’s groups met to do our part to increase awareness. This included young men and women between the ages of 13-21. We answered the following questions together. Some of these are questions that the PWSA (USA) Advisory Board answered at the end of last year in the newsletter. Some are questions from the book; “Prader-Willi Syndrome Is What I Have Not Who I am!” We are hoping to have our answers published in the second addition. Thanks for taking the time to read our answers and getting to know us!

It is hard to be a good friend when…

You are in a bad mood, you have different opinions, they are not being respectful…

What makes me special?

Being helpful, being kind, being a friend, being respectful, being sweet, being complimented, being honest, Special Olympic medals

My personal goals:

To go to college, Project Forward, jobs (office assistant, police officer, construction worker, president of the whole wide world), continue education, be a vet, behave, be safe, to go home, be a good big sister, having children, good day in school, not picking, working with others with PWS, giving recued animals a second chance/home, getting married, find old love, help wild animals…

What do you want others to know about living with PWS?

We have food disorders, we can be obese if not watched with food, we can have a hard time growing—we might need growth hormone, sometimes we get extra sleepy, we are very curious—we like to get information, sometimes we have problems with muscle tone and balance, sometimes we aren’t fully developed—we don’t always get Periods, most of us seem to wear glasses, sometimes things are hard for us, sometimes life is hard, we are people too, we have feelings, life isn’t awful, we have special needs, sometimes we have one foot longer than another, we’re friendly, we can be nice and kind, it is hard for us to deal with tragedies, because of our trouble with balance we might not be able to ride two wheeled bikes, it is hard on our parents to keep us safe/secure, we are hard workers, we are awesome…

“The great majority of men are bundles of beginnings.”
~Ralph Waldo Emerson

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