Exciting News from our friends at PWSA!

April 2, 2010

We have received word that ABC’s “Extreme Makeover: Home Edition” featuring the Starkweather family will air on May 2, 2010. Nine-year-old Ethan Starkweather has Prader-Willi syndrome.

The five member Starkweather family from Tulsa, OK consists of parents Amy and Toen, and three sons, Jared, 15, and Ryan, 13, and Ethan. Shortly after learning they were selected to receive the home, they were whisked away to a family vacation while their home was torn down and a new one built in its place.

The Starkweathers are investigating how to turn their good fortune into a way to help others with PWS by hosting a fundraiser benefitting PWSA (USA).

As a reminder, the Discovery Health Channel will air a “Mystery Diagnosis” episode featuring the Heybach family on March 22nd at 10:00pm Eastern Standard Time. John Heybach is co-chair of the PWSA (USA) Board of Directors. His son, Conor, who has PWS, sits on the Adults with PWS Advisory Board for PWSA (USA).

Please spread the word to your friends, family and colleagues as a way to help with PWS awareness. Lastly, please take note that PWSA (USA) has no control over airing dates. It is possible that the show times could change. PWSA (USA) cannot always know when and if this will happen. Please check your local listings as another way to verify and follow show times.
Thank you.
Jodi O’Sullivan
Director, Development and Communications
(image courtesy of Extreme Makeover Home Edition)

“No one is more cherished in this world than someone who lightens the burden of another.” Thank you.
~Author Unknown

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