Archive for May 2022

Caption: To make a vocational task easier to comprehend, break the steps down for someone with PWS. Slow processing speed is common in Prader-Willi syndrome. Short and concise directions are important. Always remember that people with slow processing speed will usually only hear the last thing you say.

Most people with Prader-Willi syndrome lack the ability to vomit. If spoiled food, too much food, or an episode of gastroparesis occurs, vomiting may not be possible and may lead to a GI emergency. Pay close attention to bowel movements to ensure that there is not a slowing of the GI tract. And seek medical…

Image: (https://bronsisbestfrndz.wordpress.com/2017/10/19/the-only-hand-a-girl-can-hold-without-hesitation-is-her-brother/) Since March 2020, the Latham Centers Outreach team has created opportunities for individuals with Prader-Willi syndrome and their families. Now, more than two years later, it has been incredible to see the success and growth of these groups. Today we highlight the Siblings Group. The Siblings Group includes people of all ages who…

Fine motor skills can be impaired in the person with Prader-Willi syndrome. Practice skills that will improve fine motor skills like handwriting and using scissors.

Allow the person with Prader-Willi syndrome to have the opportunity to choose whenever possible. So much of their lives are regulated and planned for them. Giving choices can allow for a sense of self-direction and independence.

The vast majority of children with Prader-Willi syndrome also have learning difficulties. It is a misconception that they cannot learn past a certain level; the truth is they are often in an environment that is not conducive to learning. The teachers at Latham create a safe environment where students can reach their goals and see…

Reach out to the Prader-Willi syndrome community on good days as well as bad days. On a bad day, you can get advice and find listening ears to help you feel less alone. On good days, you can do the same for others. If it’s happening to you, you can be sure someone else has…

Latham President & CEO Anne McManus and other CEOs representing the Cape Cod Disability Network met last week with Senators Elizabeth Warren, Susan Moran, and Julian Cyr, and Representative Sarah Peake to discuss the critical need to increase the rate for direct support professionals. Issue summary: We have joined with human services colleagues across the…

If your child is struggling in school more than usual, always check the environment before assuming it is a behavioral issue. Florescent lights, loud or repetitive sounds, hard seats, or itchy tags/clothing can all be extremely intrusive to a person living with Prader-Willi syndrome and sensory processing disorder.