TIP of the WEEK: International Rare Disease Day

  Today, the last day of February is International Rare Disease Day, when we acknowledge and honor the people living with and supporting those diagnosed with rare diseases.  What is a rare disease? In the U.S., any disease affecting fewer than 200,000 people is considered rare. This definition comes from the Orphan Drug Act of 1983 and…

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A Fish Out of Water

I am a fish out of water. Literally. I am in the desert for awhile and I am definitely an ocean girl. This makes for interesting looks I am getting from people around town. First, I don’t dress like a cowgirl. No cowboy hat, no boots. I wear what I like and I can tell…

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TIP of the WEEK: Sensory Integration

Earlier this week I attended a training on sensory integration. I have attended many trainings on this topic in the past but each time, I come away with something new, and this time was no different. As I listened to the trainer talk about different kids with different needs, why some kids struggle with crowds,…

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The “To Do List”

My head hurts. It isn’t because I’m sick. It’s my “to do” list. How in the world do I have so many partially finished tasks? If I am honest, it is probably more truthful to say partially started. I have really good intentions but lately I have gotten off track. I think of it like…

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TIP of the WEEK: Preparing For the Hospital

We never want to think our kids will need to spend any time in the hospital but a little preparation goes a long way with this unique syndrome. If you are fortunate enough to have time to prepare your child ahead of time, do so. Take a trip before his or her admission to see…

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