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Latham Says a Bittersweet Goodbye to Graduating Resident Student

Wed, 12/17/2014 - 9:30am

Latham said a bittersweet goodbye to resident student Ryan M. this week. Ryan proudly graduated Latham School with his high school diploma and a certificate of completion on Tuesday.  During his three and a half years at Latham, the gregarious Ryan was a large part of the Latham/Cape Cod community participating in a number of activities.

Tall and lean in stature, Ryan was adept at sports and Special Olympics Games; he is also the first Latham student to run and complete the Falmouth Road Race—two years in a row!  He also devoted time as a member of student council, and was even a tutor to his younger peers.

On his graduation day, Ryan provided some very wise words to his peers by telling them “to always be strong, and to never give up.”

Latham would also like to send a big thank you to the Harwich Quilt Bank for providing another Latham graduate with a memorable custom-designed quilt! The volunteer group has done so for years and the student quilt presentation is one of many highlights of graduation for our students.

Congratulations Ryan! Latham is lucky to have seen you grow into the mature, young man that you are today. We wish you well in your transition to adulthood.

Meghan Pouliot
Latham School Teacher

Annual Holiday Craft Fair a Huge Success!

Mon, 12/15/2014 - 10:36am

This year’s craft fair was a true dream come true. We were open to the public and the response was outstanding. One shopper showed up before our sale even began. At 3:01pm (sale began at 3p) I lifted my head and saw the room was full of customers. At times the parking lot was full and folks needed to wait for a spot. One woman let me know she was at our Brewster in Bloom event. Seeing the crafts there made her know that she had to come back for more. A former Latham cook came to make her purchases. She was thrilled to purchase Alumni cards. Not only was she thrilled to remember that Alumni fondly, she was thrilled because her art work is amazing. One couple had armfuls of goodies. They stated they were going to use them as gift toppers. “How can you resist this stuff?” they exclaimed waving a google-eyed reindeer made out of puzzle pieces.

Our students have been making crafts for the last few months in anticipation of the sale. They look forward to this event as not only an opportunity to showcase their artistic talent but as an opportunity to give back to the community. Student council coordinates student voting for the charity of their choice. This year our students have decided that the proceeds will be a 50-50 split to both the local MSPCA and our fund raising campaign for the renovation of our fire museum property. Shoppers also got a sneak peek at our fire museum property, since this is where the sale was held. Students manned the table and delighted in describing the items for sale and that all of the proceeds will be donated.

We have been conducting this sale for 11 years on campus and were thrilled to let the community in on it. During the sale a student caught me tearing up. She exclaimed that I was “crying because I was so proud of everybody.” That is absolutely correct. We are very proud of our students and their craft fair. Should I confess that I may also have had a tear in my eye because I could not greedily purchase everything for myself. Luckily there was no time for that—we had customers to serve. Can’t wait to see you at the Craft Fair next year!

Shauna Kelly
Transitional Supervisor

TIP of the WEEK: It's Not Just About the Calories

Fri, 12/12/2014 - 8:18am

With Christmas right around the corner some parents have asked that we re-post this blog from a few years ago. One of the hardest things to do is to say no to a child who's saying that they're hungry but with a little education your family members will see that it is the most loving thing that you can do.

Many of you have asked that I talk in greater detail about getting through the holidays, specifically about how to explain to family members (grandparents in particular) about their child's diet. How many of you have heard the following:

"It's only one cookie"
"It's a special day"
"He's thin"
"You don't need to worry about his diet anymore"
"You're being too strict"
 "Just this once."

Grandparents want to spoil their grandchildren and in many cases that includes food. Not giving their grandchild special treats goes against their nature, especially when that child is saying that they're hungry. Will one extra piece of cake ruin their diet and make them gain 5 pounds? Probably not but it's not just about the calories. We have an obligation to create an environment for our kids where they can thrive and that includes managing their expectations regarding food. When our kids know what they are going to eat, how much, and when, they can relax and can focus on the rest of their lives. When extra, unexpected food is introduced they feel anxious, stressed, and out of control.

Giving a child or adult with PWS more than what they were told that they would get creates anxiety and anxiety leads to unwanted behaviors. You are no longer grandma or grandpa, you are a food source because you created an expectation. You want your grandchild to want to see you for your love and comfort, not because you might slip them some treats that they shouldn't have. Spoil them every time you see them with presents and hugs and your company, not with food. If for no other reason than the more secure their minds are about what they are going to eat, the better behaved they will be. "Just this once" hurts them. It makes them feel unsafe and anxious and that is the last thing that you want your grandchild to feel about you. And if you think that this isn't fair, you're right. It's not fair that they can't have what the other kids have and that we have to be so careful about what we give them, but it is our reality and sticking to it will make your grandchild and your whole family better for it.

LATHAM PROFILES: Katrina Fryklund, Development Associate

Mon, 12/08/2014 - 10:56am

Katrina Fryklund
Development Associate

What do you enjoy most about your job?

Every day I am so grateful to have the opportunity to help raise funds to further enhance the life-changing programs here at Latham Centers. Moreover, I enjoy telling the story of what we do at Latham Centers and how amazing our residents and staff are – they are truly my inspiration!

Describe a few of your responsibilities and how you spend much of your time.

As a Development Associate it is my responsibility to help with fund raising. This is done through event planning, community outreach, sound media/donor communications, grant writing and working with board and Capital Campaign Committee.

What skills are most important for professionals who raise funds for individuals with PWS or other complex special needs?

When you’re raising funds for residents like ours who struggle to raise monies on their own, or have limited vocational opportunities, it is critical that the public knows how special and brave everyone is at Latham Centers. As a fundraiser, you need to know how to tell these stories in an eloquent and interesting manner.

One question I get all the time is, “How can you ask people for money?” My answer? I feel that I’m not asking for money, rather I’m asking for funding to support our amazing residents and innovative programs.

What are the most important lessons you attempt to teach new staff and what advice would you give to someone contemplating a career at Latham Centers?

Annually the Development Team works with a summer intern. I tell them to keep their head up when giving is down, think of new and innovative ways to raise monies, and to ALWAYS say, “Thank you for your generosity.” Also, I tell them it’s about who you know and how you network – don’t be afraid to be outgoing and to involve yourself in community events.

What do you love about working with individuals with PWS or other complex special needs?

When given the great opportunity to go to campus or adult residential homes I love seeing the appreciation and vivacity of each and every one of our residents. They motivate me and help me to stay engaged on a daily basis.

Has this job taught you anything about yourself?

This job has made me impress upon myself and others, “What’s the worst that can happen when you ask for funding – they might say no?” The positive energy that comes from our donors, friends, volunteers, staff, and residents is absolutely contagious and I’ve learned to act as a sponge and absorb that enthusiasm.

How do you spend your time when you’re not working at Latham?

When not at Latham I enjoy time spent with friends and family, as my roots are on Cape Cod – whether it be lounging on the beach in the summers or teaching my nephew new and exciting things about Cape Cod. I also work in restaurants on the side and enjoy the customer interaction that comes with the service industry. Lastly, I find myself getting more involved with other causes such as CCYP, and co-chair the Live for Lou Fund.

TIP of the WEEK: Conflict Resolution

Fri, 12/05/2014 - 8:36am

It is not uncommon for children and adults with PWS to find themselves in the center of a conflict at school, work, or in the community. Poor impulse controls, communication challenges and/or a lack of self awareness can lead to struggles in certain social situations. Here are some ways to help resolve conflict if it arises:

• Be sure that your child understands or at least hears his or her part in the conflict. It may very well be that a lack of preparation or understanding on someone else's part caused the problem, but it is more important and beneficial for your child to hear how he or she could have handled the situation differently. You can then privately address the other party involved.

• Don't rush to fix it. If your child loses a job or a friend as a result of his or her behavior, don't try to resolve this on your own. Your child needs to be the person to explain and apologize. Let them do the fixing. If you are always the one cleaning up the mess, your child will not learn that actions have natural consequences nor will they learn that if he or she caused it. The child needs to fix it.

• Raise your expectations. The higher you set the bar, the higher your child needs to reach. The most successful children that I have met have parents who expect more, push more and do not allow their child's diagnoses to excuse poor behavior.

• Be a support. Validate the challenges that your child has and coach him or her as to how to repair a damaged relationship; but remember that the key is to support and not to do it for them.

There will likely be many conflicts along the road. Teaching cause and effect from a young age allows children the benefit of stronger relationships as they age.

Patrice Carroll
Manager of PWS Services

Latham Works News: Liam to the Rescue!

Thu, 12/04/2014 - 8:34am
Liam has been a great example of a student who has found an outlet through vocational work to focus his attention on in a positive way.  Whether sanding a crate until it is silky smooth or keeping the halls clean as part of the “Fantastic Floor” team, Liam has shown a steadily increasing amount of reliability and consistency on the job.

Liam recently helped the Voc staff complete a sizable soap order and meet a deadline. He was instrumental in our ability to successfully present a finished product to our customer. He was focused on task completion throughout.  Liam truly saved the day!

Andy Needel
Vocational Teacher

Circle of Courage: Generosity in Action

Mon, 12/01/2014 - 1:09pm

At Latham Centers, we employ an overarching philosophy that helps to guide us in many of our interactions and communication among staff, residents, and family. This philosophy is called the Circle of Courage™.  The Circle is based on the concept that all people share four universal needs to be happy, successful, and fulfilled. They are:

BELONGING - recognizing that every person needs to feel part of a group or community

MASTERY - recognizing that everyone should feel that they are capable and skilled in at least one area

INDEPENDENCE - recognizing that every person needs to have a voice and a sense of control over themselves

GENEROSITY - recognizing that the most powerful thing a person can do is to provide service to
someone else

The Circle of Courage involves the entire Latham community and extends from our program sites to our Board of Directors, volunteers, parents, and community supporters. It is a perspective that can help us to help each other to live happier, more satisfying lives.

As friends and supporters of Latham, we invite you to join our circle as we work to expand it from our community to yours.

Our December value of the month is Generosity, during what is typically a month of giving. This is how you can participate and bring this to life in your own interactions with others within and beyond “the Latham family”:

Practice a random act of kindness. Go out of your way for someone, just to help and be nice. Find a way to compliment someone for something specific. When you provide the compliment, stop, get their attention, and speak it clearly so you know they hear what it means to you.

Write a thank you note to someone for helping you or making your world easier. Think of a person who you do not typically get along with and think of five positive attributes they have. To really stretch and bring this to life, find a way to compliment that person for one of those things even if it is really hard.

Think of a person that could use a pick me up. Remind them of how important they are to you, the world, and to others in their life.

If each of us does just one or more of the above five acts, imagine how much better our Latham community and your own community will feel—be it a Social Media one or in-person community you experience on a daily basis.  If we have a large number of individuals commit to doing one of these “generous” acts a day, imagine how Latham, and the world, for that matter, could be transformed this month and into the future.

Please find a way to be involved. Even though you will never be thanked enough, remember your work is incredibly important to the individuals around you.

Tim Vaughan
Director of Leadership and Growth

Latham Works News

Sat, 11/29/2014 - 3:03pm

Greetings All,

The Latham Works crew thought it was a good time to get the ball rolling with some holiday items for sale.  With that in mind, we offer our inaugural effort with “Scrabble Ornaments”.  They can be customized for any word or name up to 8 letters (keep it clean please!).  They’re a ton of fun! Who doesn’t love Scrabble?  Never has attaining PEACE during the holidays been so easy.  “Peace” is so much more than just a 9 point word.  And now it can be yours…

Please email or
call 528-896-5776 x-258, and we’ll help you out.

We will have order sheets and some finished products for sale at the Latham Craft Fair at 3pm next Friday, December 5th at 1439 Main St. / Rt 6A - Brewster (Former site of New England Fire & History Museum).  We’ll have a lot of our woodworking products and soap, too! Please come check out all of the students’ offerings.

Let me know if you have any questions.


Andy Needel
Vocational Teacher

TIP of the WEEK: Following Directions

Fri, 11/28/2014 - 10:38am

Here are some ways to help your kids follow directions:

1. Keep instructions clear. Use as few words as possible when giving your kids an instruction.

2. Wait several seconds after telling your child to do something. Our kids often have a processing delay and need up to 20 seconds after hearing something to fully process what they heard.

3. Tell, don't ask. If you want your child to do something, don't present it as a choice. Asking infers that they have an option to say no.

4. Give one instruction at a time. Multiple steps can be overwhelming. Often the last thing you say is what he or she will process. This can cause confusion and may lead to acting out as a result.

5. Finally, ask them to repeat what you just said. Many times our kids are not being defiant; they simply did not understand the request or what they need to do to fulfill that request.

Submitted by:
Patrice Carroll
Manager of PWS Services

Latham Lifelong Pet Care Strides into December – Dog Walking and Pet Sitting available!

Tue, 11/25/2014 - 9:15am
As the weather gets chillier and the holidays approach, don’t forget to tell your friends and family about Latham Lifelong Pet Care. Latham Lifelong Pet Care continues to offer dog walking and pet sitting at a competitive rate into the winter months. Whether you need ongoing dog walking support or temporary pet sitting/dog walking for a weekend or a couple of weeks – Latham Lifelong Pet Care can help.
Dog walking is conducted by a Latham Resident, accompanied by a Latham Centers staff person, lasting from 15 - 60 minutes per user. For the price of $15/walk a dog owner can create a schedule in which his or her dog continues to exercise during these cold months while providing vocational opportunities for students and adults with complex special needs. Moreover, these pet care opportunities provide yet another outlet for students and adults who benefit from animal therapy. Walks are offered between Orleans, MA and Wareham, MA.
Pet Sitting, or “Long Term Pet Care” is a program which offers pets cage-free living and opportunities for play and exercise, fresh air and full-time caring staff in one of our supervised residences. The routine, schedule and price are all customizable.
Please take the time to tell your family and friends about Latham Lifelong Pet Care and these win-win-win opportunities for animal welfare, special needs vocational opportunities, and animal therapy.
Questions? Please contact Katrina Fryklund at or 774.353.9126.

Latham Centers participates in #GivingTuesday

Mon, 11/24/2014 - 8:53am

We have a day for giving thanks. We have two for getting deals. Now, we have #GivingTuesday, a global day dedicated to giving back. On Tuesday, December 2, 2014, charities, families, businesses, community centers, and students around the world will come together for one common purpose: to celebrate generosity and to give. Latham Centers is part of this global celebration the whole year through. As our students and adult residents with complex special needs do, #GivingTuesday inspires people to give back and improve their local communities whether through monetary donation or volunteer action.

Volunteering at a variety of for- and not-for-profit locations ranging from animal care facilities to local churches and elder care facilities, our residents continually give back to our community. Along the way, our students and adults take pride in volunteering while gaining valuable work experience and therapeutic benefits.
Latham Players, a musical and theatrical troupe comprised of Latham adult residents, regularly performs at local churches, arts centers, and elder care facilities around Cape Cod, spreading joy wherever they go.
And just around the corner, the Latham School Annual Holiday Craft Sale, hosted by our students features a variety of handmade holiday crafts. Proceeds are donated to a charity of the students’ choice.  Friday, Dec. 5, 3-5pm. The event is open to the public at 1439 Main St. / Rt. 6A (Former site of New England Fire & History Museum).

To mark #GivingTuesday, we invite you to consider a year-end gift to Latham in honor of our students and adult residents with complex special needs. Rest assured, your compassionate, philanthropic support on #GivingTuesday or any other time of the year, will help provide cutting-edge educational and program support for the amazing individuals who call Latham home on Cape Cod.
Thank you for your online donation.
Prefer to mail your gift? Please make payable to Latham Centers at:
Latham Centers14 Lots Hollow RoadOrleans, MA   02653
All of us at Latham wish you a Happy and Joyous Holiday Season!

TIP of the WEEK: Being Thankful

Fri, 11/21/2014 - 4:06pm

Well here it is―the biggest food holiday of the year right around the corner. While we spend the next few days planning, worrying, and trying our hardest to make a stressful event go smoothly, I encourage you to find the good and be thankful for everything that you have.

As you can imagine, this time of year is our most challenging and in an effort to minimize my own stress, I wrote out my list of what I am most thankful for:

1. I am thankful that our kids and adults have a place like Latham Centers―a place where people with extra special needs can flourish and grow in an environment of safety, love, and understanding. So many people living with rare diseases are left to manage complex needs and multiple challenges with no access to specialized care. I am thankful that our loved ones have Latham.

2. I am thankful for our parents and families who entrust the care of their children to us. We are better people for having worked with your children; and we do not take that relationship for granted. Thank you.

3. I am thankful for our staff that come to work every day with passion and creativity. I am filled with pride when I see how incredibly hard our staff work and how excited they become when they witness growth and success in our children and adults.

4. But mostly I am thankful for the smiles that greet me every morning. Smiles from students and adults who wake up every day facing unimaginable odds with bravery and courage.

My time in the world of PWS has run the gamut from being awe inspiring to downright humbling. The individuals with PWS have taught me that no challenge is too big, and to never, ever give up and to never assume that you have seen it all. And for that I am eternally thankful.

Please take some time this week and take note of the good.
Happy Thanksgiving everyone!

Patrice Carroll
Manager of PWS Services

Every Trip to Stop & Shop or Peapod purchase can earn money for Latham!

Thu, 11/20/2014 - 2:01pm
Sign up before you start your Holiday Shopping!

By signing up for the Stop & Shop A+ Rewards Program (two easy steps online), employees, friends and families can help Latham earn reward money every time they shop at Stop & Shop or Peapod! 
 Stop & Shop rewards card holders simply register HERE
by entering their Rewards Card ID# and selecting Latham as the recipient.
Step 1: Enter your S&S Rewards card #
Step 2: Select Latham by searching Brewster / MA schools or using our School ID# 07054.

Your participation will ensure that Latham Centers continues its innovative treatment, such as:
  • Pet Care Programs that helps individuals who have suffered trauma build trust;
  • Sensory therapy to promote greater well-being and enhance overall learning and calmer focus;
  • Art and performing arts therapy and sports, recreational, and vocational programs designed to enhance the health, confidence and socialization of special needs individuals

This program does not affect your current Rewards offerings -- you will still receive your gas and other rewards points. For answers to other frequently asked questions about the A+ program, click on the FAQ link at

Community Outing News

Thu, 11/20/2014 - 11:34am
Pictures taken by Alanna Murphy Latham students attended another successful community outing to the Cape Museum of Fine Arts and the Natural History Museum. Students were able to explore the local museums to learn about Cape Cod’s wild life and culture. Everyone involved enjoyed interacting with the exhibits and asking questions about the displays.

Submitted by:
Meghan Pouliot

TIP of the WEEK: Transitions

Fri, 11/14/2014 - 2:23pm

Transitions are the single most challenging part of any day for the person with PWS. When a person with PWS is faced with a big transition, it can be that much more challenging.

Here are some ways to make transitions a little bit easier:

1. Practice with social stories, verbalizing what each step will look like, and doing dry runs. This will allow your child to mentally prepare for some of life's bigger transitions like changing schools or moving.

2. Validate and plan for anxiety. Transitioning from the familiar to the unfamiliar is extremely difficult for our kids. Plan to have extra supports around for both you and your child.

3. Allow for setbacks. In being patient with the process, it will allow for long-term success; and you will be teaching your child that the best things are worth fighting for.

4. Most importantly, be there for your child without doing the work for them. Allow for some of the bumps that inevitably come with a big transition and show him or her that they can do this even with increased anxiety.

Patrice Carroll
Manager of PWS Services

Related Posts:
A Transitonal POV
Living with Anxiety
Coping Strategies

Belonging at Latham

Fri, 11/14/2014 - 8:48am

As the admissions assistant at Latham Centers I regularly give program tours to parents and families.  I was recently on a tour of Latham School in Brewster with a young man and his father. We were anticipating an admission, so the young man was scheduled for a classroom visit after the tour.
While on the tour, we paused to discuss one of the quadrants of our Circle of Courage™ tenants known as Belonging.  The father and I discussed recently passed bullying laws.  I commented that I was really glad that there were bullying laws that prevented children from being ostracized.  He quietly replied “Yes, but they don’t always work.”
His eyes fell on his son who had become preoccupied with a bee collecting pollen. He then shared with me that his son had felt bullied at times in public schools, and that for his entire educational experience, he never really had any true friends, and that he certainly didn’t feel that he belonged.
As we concluded the tour, I asked the young man if he was ready to join the classroom and meet his new friends. His eyes lit up as he looked at me with awe and asked, “Do I have friends here already?”  I replied “Of course you do, everybody is friends here. All of the students are friends with each other!” He happily skipped along as we made our way to the main schoolhouse eagerly anticipating the group of friends he was about to meet. 
When we got to his classroom, the students were in performing arts class; but his new teacher and aide were waiting for him. They showed him his desk, which was covered in cards that his classmates had made to welcome him. His jaw dropped when he saw all of the cards and his hands began to shake with excitement as he carefully read them. I walked over to him and asked him if he had seen the whiteboard behind him. 
When he turned around, he saw a huge welcome sign with his name on it in bright colorful letters.  He squealed with delight, “Dad, look at what my friends made for me!” showing his father the cards and pointing to the whiteboard. His teacher took him to meet his classmates and join the class in session while his father and I went to my office to fill out paperwork.
When we returned at the end of the school day to pick up the young man, we watched him saying goodbye to all his new friends/classmates.  When I asked him how his day went, he replied, “It was the best day of my life!” He said I was right that all of the kids here were his friends, even the kids that weren’t in his class. He said to his father, “This place is better than Disney!”  The father said he had never seen his son so happy. 
This is what Belonging is all about. This boy finally had a place where he felt like he was accepted and could and would belong.

Rachel DeweesLatham Admissions Assistant

Latham Works News

Thu, 11/13/2014 - 8:42am

Horticulture is one of the most popular jobs on campus.  There is much to do, as we grow plants from seed, root cuttings, or purchase young ornamental plants to raise.  Also, through our relationships with local businesses, we receive donated cut flowers that students arrange and deliver around the Latham campus.  It is a truly amazing experience when you bring our students and flowers together. Flowers have such a positive effect on everyone’s mood.  Walking into the greenhouse changes people; some are stimulated by the colors, aromas, and textures while others are calmed; appearing less anxious or agitated. 

Preparing flowers is an art form. Our students can explore their creativity in arranging and learning what works and doesn't work with much opportunity to improvise. Students may work individually or in groups, but when the work is done, it is time to deliver their bouquets or plants. The students have a chance to brighten someone else’s day.

Andy NeedelVocational Teacher

Celebrating Philanthropy on Cape Cod

Tue, 11/11/2014 - 9:25am
Bob Newman of Ocean Edge Resort & Golf Club Accepts the Business of the Year Award at Philanthropy Day 2012
On Wednesday, November 12th, ten Latham Centers Board Members, staff and affiliates will attend Philanthropy Day on Cape Cod in Hyannis, MA, hosted by Philanthropy Partners of the Cape and Islands. This is one of the largest nonprofit events of the year on Cape Cod with some 600 attendees. Offering a variety of educational speakers, workshops and networking opportunities, including a Luncheon Awards Celebration, Philanthropy Day is in its 18th year.

The sold-out conference celebrates philanthropy on Cape Cod and the Islands by bringing together a plethora of philanthropy professionals, philanthropists, volunteers, and community leaders under one roof. Latham has a had a close association with this high-profile day having nominated several past winners in the volunteer and business of the year award categories. And Latham's own Gerry Desautels, VP of Development and Community Outreach, has served as Event Co-Chair in 2013 and 2014, managing a committee comprised of some 20 volunteers. The committee meets year-round to plan the big day in November which is National Philanthropy Month. Latham is very grateful for the generosity of the community and enjoys giving back through its engagement with Philanthropy Day. To learn more, visit

Latham Employee John Bonanni Receives Notable CCYP Scholarship

Fri, 11/07/2014 - 2:31pm
  He is Second Staffer to Win this Prestigious Scholarship in 2014  
Latham employee John Bonanni made everyone at Latham Centers proud when he accepted a $2,500 scholarship from the Career Connect initiative of Cape Cod Young Professionals at their 10th Annual Anniversary Celebration at Chatham Bars Inn on November 6th. Bonanni was awarded the monies after a competitive review process vetted by CCYP, a volunteer review Board, and the Cape Cod Foundation. Bonanni’s CCYP scholarship will go far in helping him to complete a Master's in Education program at Bridgewater State University with a special education concentration. (Latham employee Dawn Dinnan received a similar scholarship in CCYP's Spring 2014 scholarship award round.
Bonanni, an active writer and established teacher working in the Race Point Classroom at the Latham School campus, concentrates on arts in education, mindfulness, sensory activities, and community outings. Students and staff alike gravitate towards him as his outgoing, expressive, and humorous personality precedes him. Bonanni has been with Latham since 2008 and first worked on the Residential side of the house for both Children's and Adult Services. He most recently transferred back to Children's to teach at Latham School. Outside of Latham, Bonanni spearheaded the Cape Cod Poetry Review where he currently serves as the Editor-in-Chief. Also receiving grant funding from the Arts Foundation of Cape Cod for the Cape Cod Poetry Review, Bonanni has set himself above his CCYP Scholarship competition as a consistently active member of his community.
CCYP’s 10th Anniversary Celebration also included information on the impressive increase in volunteers and membership over the course of the past year for the organization. Highlights included the results of the Shape the Cape Survey and a new Mentor Exchange Program.
The new projects and programs established by CCYP over the past year align with CCYP's goals to retain and recruit a diverse workforce for our region, build healthy and vibrant communities, and increase civic engagement for the betterment of the future of Cape Cod. To learn more about the CCYP Career Connect Scholarship Program visit here.

KATRINA FRYKLUND, MSCDevelopment Associate

TIP of the WEEK: Bladder issues in PWS

Fri, 11/07/2014 - 2:00pm

Many of our kids and adults have issues with urinary incontinence. This is often seen as behavioral, but the truth is, although it can be, it seldom is something that they have control over. The typical person feels the need to urinate when the bladder is half full (about one cup) and has extreme urgency when the bladder is near full (about 2 cups). Individuals with PWS does not feel that initial "half full" urge to urinate, and by the time they do feel the need to go, the bladder is nearly full. This means that by the time they feel the urge, it is almost too late. You know this too well if you have ever been stuck in traffic with a person with PWS that once he or she has to go, you have minutes at most to get to a bathroom. So here is what you can do:

1. Plan bathroom breaks at least every hour whether your child has the urge to go or not.

2. The flow of a person with PWS is different as well and he or she should be encouraged to wait several seconds before stepping away from the toilet. It may take up to 30 seconds for the flow of urine to start.

3. Encourage your PWS individual to take in fluids during the daytime and less so in the evening. Overnight incontinence is extremely common. Restricting fluids after dinner will help with this.

4. Avoid shaming of any kind. This will only foster sneaking behavior around incontinence such as hiding wet underclothes and pants, unwanted behaviors due to embarrassment or guilt, etc...

Don't forget that people with PWS are more prone to hyperhydration than a non-PWS person. Hyperhydration can be just as or even more dangerous than dehydration. Always check with your child's doctor as to how much fluid your child should drink each day.

Patrice Carroll
Manager of PWS Services


"And they said my child would never..."

Latham Annual Report 2014